Bone Marrow Transplant Resource Netmarks

This is a listing of resources on the Internet about blood and bonemarrow transplantation in a bookmark format updated on a regular basis.This is provided as a service from the Universityof Oklahoma Health Sciences Center Blood and Marrow Transplant Program.No endorsement of content or advertisement is implied for any of thesesites. Suggestions, comments and additions are welcome by contactingthe address at the bottom of this page. Portions of viewer's reviewson any of these sites may be considered for publication as annotationsunder the listed site.

Donor Registries

BioSafeDonor Registry
AsianAmerican Donor Program
BuddhistCompassion Relief Tzu Chi Foundation
Asiansfor Miracle Marrow Matches: An organization dedicated to recruiting Asian and Pacific Islanderpotential bone marrow donors.
NMDPOnline: The National Marrow Donor Program maintains a computerized registryof volunteer marrow donors, willing to become donors if ever matched witha patient in need of a transplant.
BMDW- Bone Marrow Donors Worldwide: Bone Marrow Donors Worldwide is a project for the collection of theHLA phenotypes of volunteer bone marrow donors and cord blood units, andfor the coordination of their worldwide distribution. Participants are37 donor registries from 27 countries.
TheNorwegian Bone Marrow Donor Registry
EuropeanMarrow Donor Informations System (EMDIS)
TheAnthony Nolan Bone Marrow Trust: The Anthony Nolan Bone Marrow Trust is a leading centre for researchand also runs the United Kingdom register of potential bone marrow donors.
TheHLA Registry Foundation, Inc.,: The mission of the HLA Registry is to assist patients with potentiallyfatal blood diseases in finding compatible unrelated donors for life-savingbone marrow transplants, including helping patients and their familiesraise funds for HLA tissue-typing. It is also the largest donor registryof the congressionally sanctioned National Marrow Donor Program (NMDP).
AmericanBone Marrow Donor Registry (ABMDR): Contains information, instructions and online consent form on becominga volunteer bone marrow donor. Coordinated by the Caitlin Raymond InternationalRegistry.
CaitlinRaymond International Registry: The Caitlin Raymond International Registry is a comprehensive resourcefor patients and physicians conducting a search for unrelated bone marrowor cord blood donor. The Registry accesses more than 1.4 million donorsinternationally (not including the donor panel of the National Marrow DonorProgram).
ZentralesKnochenmarkspender-Register Deutschland
BONEMARROW DONOR PROGRAMME (BMDP), SINGAPORE: The BMDP is registered under the "Health Endowment Fund"of the Ministry of Health, Singapore. The mission of this programme isto find matched unrelated donors for patients needing a marrow transplant.
HongKong Marrow Match Foundation (HKMMF): HKMMF was founded as a charity in 1991 to establish a registry of Chinesepeople who have voluteered as potential bone marrow donors.
NIHfact sheet on Bone Marrow Donor Registries
Bonemarrow registers around the world: Addresses, phone numbers and fax numbers of various bone marrow registers.
USABone Marrow Registers

Transplant Registries

IBMTRand ABMTR Home Page: Home page of the International Bone Marrow Transplant Registry andAutologous Blood and Marrow Transplant Registry (North America). Data collectedfrom over 300 centers worldwide pertaining to all aspects of hematopoieticstem cell transplants and statistics presented in various graphs.

HLA Information & Typing

AmericanSociety for Histocompatibility and Immunogenetics (ASHI): Specialists in the field of Histocompatibility and Immunogenetics workhard to provide transplant patients with organs and bone marrow that havethe best chance of long term success. Through organizations such as ASHI,they are always learning the latest techniques and scientific advances.Their knowledge and skills are utilized by transplant surgeons, transplantphysicians, transplant coordinators, and organ procurement coordinatorsas part of a team effort.
AmericanSociety of Histocompatibility & Immunogenetics (Gopher)
BritishSociety of Immunogenetics & Histocompatibility (BSHI): BSHI is a non profit making, non political society, which has recentlyapplied for charitable status. It is essentially a forum for discussionand refinement of scientific and technical innovations, as well as personneltraining and communication between Histocompatibility & Immunogeneticslabs throughout the the UK.
Univof Pittsburg Med Center Div of Molecular Diagnostics
TissueAntigen Laboratory (Imperial Cancer Research Fund)
SouthThames Tissue Typing (Guy's Hospital)

Organizations

Foundationfor the Accreditation of Hematopoietic Cell Therapy Home Page
COTA- Children's Organ Transplant Association, Inc.: COTA - Children's Organ Transplant Association, Inc. is dedicated toensuring that no individual is excluded from a life saving organ transplantbecause of a lack of funds. COTA's goals are to assist the families andcommunities of transplant-needy individuals in raising the necessary fundsfor the transplant and transplant related expenses and to educate the generalpublic on the need for organ donors and organ transplants.
Transplantsfor Children: Transplants for Children serves families of young organ and tissuerecipients who must confront the emotional, financial and social challengesassociated with transplantation.
WorldMarrow Donor Association GUIDELINES
EuropeanGroup for Blood and Marrow Transplantation (EBMT)
NationalCancer Center Network (NCCN)
VSBCorporation:Financial resources to the seriously ill: This program enables a person living with any life threatening illnessto sell all or part of their existing life insurance policy when additionalresources are most needed.

Cord Blood

LIFEBANKCRYOGENICS
UnitedStates Cryobanks of Florida/United States Center For Cord Blood
TheInternational Cord Blood Foundation (ICBF)
ClinicalResearch News for Arizona Physicians:Cord blood banking
CordBlood offers patients new blood cell source: NEWS
NewBank stores cord blood for future use: NEWS
CordBlood Registry:a cord blood storage service

Treatment Protocols

HumanGene Therapy Protocols
PurgingBone Marrow Prior to Autologous Bone Marrow Transplants Decreases RelapseRate and Treatment Failure in Patients with Acute Myelogenous Leukemia
Diagnosislist for NCI Protocols
NCI/PDQCancer Facts: Patients Needed for Breast Cancer Clinical Trials - Updated10/95
PlasmaCell Neoplasms - PDQ Research Protocols
SWOGProtocols
PhaseII Study of Active Immunization of Related Bone Marrow Transplant DonorsAgainst Purified Myeloma Protein from the Recipient Undergoing AllogeneicBone Marrow Transplantation (Summary Last Modified 03/96)
CALGB9254: Anti-B4-blocked Ricin Adjuvant Therapy Post-Autologous Bone MarrowTransplant-A Phase III
NCCFHelpCureKids Web - CCG Protocol: 1941
IL-11in BMT for thrombocytopenia: Genetics Institute studies
Anti-CMVantibody trial
TrialNumber :ECCTRA52

Other BMT Resources

BoneMarrow Transplant
Art'sleukemia and bone marrow transplant links: A wealth of information and links collected by Art Flatau.
GrannyBarb'sLeukemia Links: From the listowner of Hem-Onc, the Hematologic Cancer Support List,an organized presentation of leukemia links that include BMT sites.
SteveDunn's CancerGuide: Bone Marrow Transplant Information
BoneMarrow and Organ Transplant
thrive@health- BONE-MARROW TRANSPLANT
BoneMarrow Transplantation : Oncolink Page
BMTfor Invasive Breast Cancer
1996.05.28: Do Bone Marrow Transplants for Breast Cancer Work Better Than StandardTreatments?
BMTfor Hodgkin Disease
Besttime to do a Stem Cell Transplant
COMPARISONOF PERCEIVED SYMPTOMS OF PATIENTS UNDERGOING BMT

Patient's Stories

Computersfor BMT kids
Policedepartment employee in need of bone marrow transplant
Kim'sMarrow Links
Joe'sStory
Helpneeded to save a child's life:Alana Dung
JillyGorilly
Pleasehelp us help Karen!
LocalPeople In Need of a Marrow Transplant
FocusOn: an online bone marrow transplant
EliaBorrero Story
Bratneeds your help
LindseyGothard Home Page
CorneliaAnderson desperately needs a BMT
BoneMarrow Transplant Fund for Gene Jack
LatinoLink:FAMOUS LATINO DAD'S BONE-MARROW SEARCH HIGHLIGHTS NEED
Jennifer'sWeb Page
Mira'sMonth
MyPersonal Experience as a Bone Marrow Donor - Brian E. Beattie
AutologousBone Marrow Transplant as a Treatment for Breast Cancer
WilliamAndrew McCrary Lawson
Someoneyou should know--Martin Williams
BMTVet Looks Back
InMemory of Vrushali Ranadive

Support Groups

AMERICANSHARE FOUNDATION
TRIO- Welcome!
Societyfor Transplant Related Support
EmotionalSupport Resources
Supportgroup snapshot--Chicago area
Sourcesof Medical Information and Support
Universityof Pennsylvania Cancer Center: Patient Support Groups
WhySupport Groups?
OUHSCBMT Support Group
BMTSupport Groups and Phone Links
ProvidingSupport for BMT Patients
HelpingPeople Cope: If You Need: Support Groups
HelpingPeople Cope: If You Need: Support From Others Who Have Had Cancer

Mailing Lists and Archives

OncoLinkAutomated E-mail Discussion Group Subscriber: Oncolink's service that allows automatic subscription to one or manyelectronic discussion groups or mailing lists such as Hemo-Onc list, BMT-Talk,Cancer-L, BMT-Dr, etc.
BMT-TalkHome Page
HEALTHWEB:ONCOLOGY